I said I would post again to bring you all up to date with what is going on here. While chemo is not the most pleasant thing to write about, it has been my life the past couple of months so I’ll fill you in on that. In order to get it all started I first had a minor outpatient surgery to get a port in my chest. My treatments all go through the port rather than a vein in my arm. They feel this is safer due to the strength of my chemo. Since my cancer is stage four and has spread from the ovaries to the colon, they are hitting it up fairly hard. I am currently having chemo treatments every three weeks and each treatment lasts almost a full day. I receive two different medications administered separately. The first one takes a little over three hours and the second one is a bit faster. I always have blood work first and then see the doctor. After that the chemotherapy gets started. I don’t need to tell you how scared I was, especially for the first treatment. I had seen family members go through this but it is a bit different when it is yourself.
My view during chemotherapyThe truly
difficult part of chemo for me starts the second night after the treatments. In
my case I have terrible aches and pains along with a weakness I have never felt
before. I have plenty of medication at home for nausea and it helps most of the
time. However, I ended up in the hospital for a week a few days after my first chemo
treatment. I was in so much pain plus I had a severe colitis infection.
I managed to
stay out of the hospital after the second treatment but all of the discomfort I
felt the first time just seemed worse. I also started feeling numb in my
fingertips and toes which is related to chemo induced neuropathy. I have
learned to not plan anything for at least a week after each chemo treatment because
I am just barely able to function during that time.
My hair
started coming out a week after the first treatment and by now I just have a
little fuzz on my head. It is hard to see and experience that. I ordered some
chemo hats to wear although I rarely leave the house these days. We are having
groceries and most other items delivered which helps.
So yes,
chemo is rough, very rough, but as long as I can manage I am going to fight
this with all I have. There has been a time or two that I was so low I wondered
if I could continue but I know I have to, so I will.
I’m sorry
this is such a downer of a post but as I said, this is my life right now. Maybe
if someone else going through this reads my post it will help them to not feel
so alone. Or if someone has a friend or family member going through this it
will help them to understand what their loved one is dealing with. At any rate,
I appreciate you all being here.
Oh my, Bonnie, my heart goes out to you. I do appreciate you being so honest about the treatments as no one knows when we might need the information ourselves. I'm sorry the treatments are so hard to bear. I'm sending you wishes for continued strength, and good moments even during the hard times. Please keep us updated when you are able. Hugs, my friend.
ReplyDeleteThank you for your good wishes, they mean so much. I know you have been through much of this and I am so sorry for that. I appreciate your friendship.
DeleteIt is very brave of you to be able to write about this Bonnie. Thank you for having the strength to share it in such a readable way for us to understand. I am interested to hear that you are able to drive yourself. I think of you a lot. Life is tough and so unfair. I am sorry you are going through this. Rachel xx
ReplyDeleteAs you probably know, I am somewhat of a stubborn and independent person and I prefer to drive myself when possible. The first couple of months of my illness my son took me to all appointments and did so much for me, but he does have a job which he missed a lot of for me. He did take me to the first chemo treatment in case I was not able to drive. I did ok and have driven since. Three or four days after the treatment I would not be able to drive but the first couple of days I have managed fine. Of course, if I did not feel safe to drive I would not take the chance.
DeleteYou are right about life being unfair, but I believe there is something for me to learn from all this and whatever it is I just hope I learn it. I think of you a lot too Rachel and I'm glad you are here. I'm enjoying your blog, just not been up to commenting. Thank you Rachel. xx
Sending you strong wishes, it's a bloody hard slog, resting in the following week is a must, your body needs it.
ReplyDeleteYour strong wishes are very much appreciated. It is good to have your support and presence, thank you.
DeleteThis was a hard and sad read, but I'm glad you shared it with us Bonnie. Boy it really takes me back to both of my parents cancer journeys. You're a very dear person and in my sincerest thoughts. Please keep us updated when you can. ❤️🙏
ReplyDeleteI'm sorry about your past experience with cancer and your parents. I went through it with my mother and brother and the pain is very real. I have said I'd rather have it myself than watch another loved one go through it, and I still feel that way. I appreciate your good thoughts and friendship Doug. Friends do make a difference.
DeleteThank you for the update, Bonnie. A very honest and brave look at chemo. My 53 year old BiL has been through this with Stage 4 Metastatic Prostate Cancer, so I am familiar with just how difficult the journey can be. My heart goes out to you, as do my prayers. Thinking of you. ❤️🩹
ReplyDeleteMary thank you so much for your good thoughts and especially your prayers. I'm glad you are here.
DeleteHi Bonnie, You are very brave! Chemo and cancer suck. I am so sorry you have to go through this. Prayers for you!!
ReplyDeleteI don't feel very brave but I appreciate you saying that because bravery is what I need now. I do have a lot of faith and I know that makes a difference. Your prayers are appreciated Connie!
DeleteOh dear bonnie, I am so sorry. Wish I could give you a big hug. You are certainly in my thoughts and prayers daily. Sending lots of love and best wishes. Melba
ReplyDeleteMelba, I would love to take that big hug! I so appreciate your thoughts, prayers and love. Just hearing from you helps.
DeleteBonnie, this is not a downer of a post. Instead it shows to me how you are fighting and that is a great incentive to others who are undergoing the same things. Sending you some gentle hugs across the pond and lots of prayers. You are amazing.
ReplyDeleteGod bless.
Oh Jackie I am trying to fight this but it is an uphill battle. I do hope there is some way I can help others. Your hugs and prayers give me strength, thank you.
DeleteAs you know, I can relate to a lot of what you are going through. I was diagnosed stage 4 bladder and liver cancer. I hope you are as blessed as I have been. No matter how bad it got...(and the cure feels like it is going to kill you, for sure)...the alternative is worse--lol! So--yes--you hang in there. One day at a time. I am sending all the healing energy and prayers and good wishes that I can, dear Bonnie. With much love and gentle hugs from Fargo. :) :)
ReplyDelete
DeleteRita, I remember well when you were going through this. In fact, when I was diagnosed you are one of the first persons I thought of. Thank you for all of your good thoughts and prayers. I'm glad you are here.
Dear Bonnie, so much of this is familiar to me since my husband went through chemo for lung cancer 13 years ago. Chemo is tough, but you can do it! Just hang in there if you can. I'm sorry you're going through this. If I lived close by I'd bring you soup and homemade bread. :) Take care, friend.
ReplyDeleteI know you and Gregg have been though this and whenever he is sick it worries me. He is so fortunate to have you to help and support him! That soup and homemade bread sure does sound good! Thank you Jennifer for everything!
DeleteBonnie, I’m so glad you visited my blog and wished me a happy birthday because now I have caught up with reading your posts since 2023. You have experience some great highs (Annika’s wedding, Juniper’s birth, Gavin’s graduation) and a terrible lows with your own health issues. I wish you only the best and am pulling for you to overcome in the long haul. Please know that my prayers for your complete healing and the eradication of the cancer will be ongoing. Take care of yourself as best you can. Your blog friends will do the heavy lifting.
ReplyDeleteBob thank you so much for your very kind comment and particularly for your prayers. I very much appreciate them.
ReplyDeleteThis is the first time I have read your
ReplyDeleteBlog. My heart hurts just reading what you are enduring.
I am praying for your recovery.
His grace is sufficient for us.
Thank you Anon for your comment. Your thoughtfulness and prayers are appreciated.
ReplyDeleteThank you for keeping us in the loop. As you say, chemo is rough, but you are fighting for a good cause - actually, for the BEST cause! From your description, it sounds like you are in very good hands at the clinic, with everything provided for patients undergoing chemo.
ReplyDeleteHats off to you for still driving yourself! My sister's best friend realied heavily on her to drive him to and from treatments, and he was only in his 50s. But each body is different, and treatments affect people in different ways.
Thank you Meike, and you are right, it keeps me going that I have the best cause to fight for - my family! The clinic I'm going to is excellent and you could not ask for nicer doctors and nurses.
DeleteI have been able to drive myself only because the side effects of the treatment do not kick in for a couple of days. Once they kick in I wouldn't try to drive. I think the meds they give me to prevent side effects work well for a couple of days. It's great that your sister could help her friend. Every treatment and person are different and for that matter I may not be able to continue driving after a while. I guess we'll see.
I've been enjoying your blog, just not been up to many comments. You chose the glasses I would have chosen!
I am sorry for what you are going through Bonnie and wish you all the strength and determination you need to fight this! Sending lots of love and good wishes your way. X
ReplyDeleteThe anonymous at 11:14 is me Bonnie!
ReplyDeleteThank you Simone, it's the good thoughts from friends like you that help to keep me going. Bloggers are the best! xx
ReplyDeleteJust catching up with your blog again Bonnie. I am so sorry that you are having o go through all this chemo business. Thanks for explaining what it has been like. As you suggest, your account could benefit others who are in the same boat as you or find themselves facing a similar cancer diagnosis in the near future. I hope you will continue to move forward with dignity and courage. Sending love from Yorkshire, England.
ReplyDeleteNeil x
Thank you Neil for your understanding and kindness. I appreciate it.
ReplyDeleteBonnie, I had 4 doses at intervals of 3 weeks nearly 3 years ago, and ended up in hospital after the third with dehydration. I never thought it possible to feel so sick. I managed to struggle through the fourth without hospital. Just as you feel better they give you it again. It is a vile treatment, but it worked for me and has given me more time, although I am struggling now. Hope you can see it through. It's not what you would wish on anyone. Thinking of you.
ReplyDeleteTasker thank you for your helpful comment. I have read all your posts about your condition and treatments. I am so sorry for all you have and are going through. Like you, I never thought I could feel so sick. I'm glad to hear the chemo worked for you but I'm sorry you are struggling now.
ReplyDeleteCurrently I have had 3 treatments also at 3 week intervals. It is such a long day. In 3 weeks I will have another CT scan to see if the cancers have shrunk enough for surgery to hopefully remove them. I'm afraid to get my hopes up. If things don't look good I will have more chemo. After I am able to have surgery I will have more chemo because they know part of my cancer can't be removed surgically.
Tasker it is helpful to hear from you knowing you understand all this. I can't imagine 3 years of this. I pray you find comfort and peace and your struggling is lessened. Thank you.
I found that there were long periods, 3 months, when little happened and I was generally OK, and then there would be a flurry of scans and appointments, but all was stable. It might no longer be, we don't really know.
DeleteAfter the chemo I had radiotherapy - every weekday for a month. I'm glad I didn't ops for surgery, but as your condition is different so may be your options.
It really does help to be able to read about others in similar predicaments. Weaver of Grass was an inspiration as to how you can cope. It helps to have a good mental life, e.g. blogging, because on bad days there may not be much else.
Radiotherapy five days a week for a month sounds tough, really tough. They tell me I will have to have the surgery plus if there is any chance to possibly reverse this colostomy I want to do it. Because the cancer started with the ovaries and then spread to the colon they call it all ovarian cancer. However I am more concerned about the colon cancer because it seems to cause me more difficulties.
DeleteI am so glad for you that you are able to have time periods now of little happening, you certainly deserve the break even though I imagine it's always in the back of your mind. It does help to know others that have been there and understand. I have always had great admiration for Weaver. When I was diagnosed I knew I had to get back to blogging because bloggers are so understanding and helpful. Thank you for your help Tasker.
Dear Bonnie, I so appreciate you updating here, thinking of you and wishing you nothing but the best. You are a good and brave person.
ReplyDeleteYael, it is so good to hear from you. Thank you so much for your kind thoughts. I keep you in my thoughts and hope you are doing well.
DeleteHow's it going?
ReplyDeleteHi Tasker, thanks for thinking of me. My third chemo sent me back to the hospital once again. The chemo seems to set off a severe colitis infection in me which causes more pain than I can tolerate and requires IV antibiotics. I will see my oncologist before I have any more chemo and see if he wants to change anything. I'm going to try and make a post before long, just trying to get myself together after the last couple of weeks.
DeleteGood to hear you are still fighting. Don't give in to it.
Delete